STRENGTHENING the global effort to CURE neuromuscular disease

Ria Tilve, MPH, has received a Pediatric Research Award from the American Neuromuscular Foundation (ANF) for her study of Guillain-Barré Syndrome (GBS) in children. Her research examined 77 pediatric cases over 24 years, shedding light on the challenges of diagnosing this rare autoimmune condition. “Guillain-Barré Syndrome is a rare condition in which the body’s immune system attacks the nerves, causing sudden muscle weakness, tingling, and even paralysis,” Ms. Tilve explained. Her findings confirmed that most children recover well with timely treatment and identified cauda equina enhancement on spinal MRI in over 80% of cases—suggesting it could serve as a valuable diagnostic tool. 

The study addresses a major gap in pediatric data. “Guillain-Barré Syndrome can be difficult to diagnose early in children due to its variable presentation, leading to delayed treatment,” she said. “There is also limited data on GBS in children, with most existing research focused on adults.” Her work highlights how spinal MRI could support earlier diagnosis, especially when standard tests are inconclusive or delayed. “Our findings also support the use of spinal MRI as a helpful tool when Guillain-Barré Syndrome is suspected,” Ms. Tilve noted, emphasizing the potential for quicker interventions and improved outcomes. 

Being honored by the ANF is a meaningful milestone in Ms. Tilve’s early career. “Receiving this award is incredibly meaningful as a student and motivates me to continue pursuing research that advances pediatric care,” she said. As she prepares to present at the AANEM Annual Meeting, she looks forward to engaging with experts: “It will be a great environment to learn, ask questions, and meet others who are passionate about this field.”