Patients

Share Your Journey

Patient Perspective Form


The ANF amplifies the voices of those affected by neuromuscular disease—patients, families, and caregivers—through compelling digital and print publications that raise awareness and shed light on the real-life impact of these diseases.

If you or a loved one has been affected by a neuromuscular condition and would like to share your perspective, please complete the Patient Perspective Form below. Our team may reach out for a follow-up interview if an opportunity becomes available.

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Inspiring Patient Perspectives from the American Neuromuscular Foundation

Living Boldly With a Rare Disease: Cienna Ditri’s Mission To Empower and Educate

Navigating CIDP: How One Man Survived a Near-Fatal Battle

Finding Hope and Laughter in the Face of ALS: Brooke Eby’s Journey