News Express
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Research on Activity-Based Treatments to Accelerate Peripheral Axon Regeneration Finds Notable ResultsJuly 05, 2024
Research on Activity-Based Treatments to Accelerate Peripheral Axon Regeneration Finds Notable Results.
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Support Those RACING for a CUREJune 26, 2024
Support the ANF Charity Team in their RACE for a CURE!
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Erika Williams, MD, PhD, Receives ANF Development Grant for Genetic Research on Autonomic Nervous SystemJanuary 22, 2024
Erika Williams, MD, PhD, a NM fellow at Massachusetts General Brigham, was selected to receive an ANF Development Grant to support her research project, “Genetically Decoding Human Afferent and Efferent Autonomic Ganglia.”
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Mai Yamakawa, MD, Receives ANF Development Grant for Research on NK Cells in ALS and FTDJanuary 22, 2024
Mai Yamakawa, MD, a NM fellow at UCLA, was selected to receive an ANF Development Grant to support her research project, “Causal Genetic Variation and Transcriptomic Signatures of the Peripheral Immune System in the Central Nervous System Pathology of ALS That are Conserved or Divergent Among ALS Patients and the Animal Models.”
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Tyler Nelson, PhD, Receives ANF Development Grant for Research on Chronic PainJanuary 22, 2024
Tyler Nelson, PhD, was selected to receive an ANF Development Grant to support his research project, “Analysis of a Novel Primary Periodic Paralysis SCN4A Mutation With Pain as a Major Phenotype.”
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Michael Skolka, MD, Receives 2023 Golseth Young Investigator AwardAugust 18, 2023
Michael Skolka, MD, has received the 2023 Golseth Young Investigator Award for his abstract titled, "The Utility of Electrodiagnostic Testing in Rhabdomyolysis in the Era of Next Generation Sequencing."
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Stephanie Harvey Receives 2023 Technologist Best Abstract AwardAugust 18, 2023
Stephanie Harvey, EMG technologist in the Department of Neurology with McGovern Medical School at UTHealth Houston, has been awarded the 2023 Technologist Best Abstract Award for her abstract, “A Survey of Nerve Conduction Technologist’s Role in EMG Labs.”
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Oksana Haiko, MD, PhD, Receives 2023 Best Abstract Runner Up AwardAugust 18, 2023
Oksana Haiko, MD, PhD, has been awarded the 2023 Best Abstract Runner Up Award for her abstract, “The Role of Ultrasound in Diagnosis of Nerve Injury After Gunshot Wounds and Blast Injuries.” Her co-authors include Liudmila Klymchuk, MD, and Roman Luchko, MD, PhD.
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Jerry R. Mendell, MD, Receives 2023 Best Abstract AwardAugust 18, 2023
Jerry R. Mendell, MD, has been awarded the 2023 Best Abstract Award for his abstract, “Long-Term Safety and Efficacy in Patients With Duchenne Muscular Dystrophy 4 Years Post-Treatment With Delandistrogene Moxeparvovec in a Phase 1/2a Study.”
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Finding Hope and Laughter in the Face of ALS: Brooke Eby’s JourneyJuly 13, 2023
In March 2022, at the age of 33, Brooke Eby received a life-altering diagnosis: amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Now 34 years old, Brooke reflects on her journey and how she has transformed her diagnosis into a powerful platform for awareness and advocacy.
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Support the RACE to CURE Neuromuscular Diseases
July 07, 2023
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Late-Onset Neuromuscular Disease Consortium Founded to Improve Care for Adults Across Neuromuscular Conditions
November 29, 2022
Recognizing an opportunity to better serve people living with rare neuromuscular conditions diagnosed in adulthood, the American Neuromuscular Foundation (ANF) founded the Late-Onset Neuromuscular Disease Consortium (LONDC) to facilitate collaboration across advocacy organizations, academia, clinical practice, industry, and other stakeholders. Visit londc.neuromuscularfoundation.org to learn more and stay up to date on LONDC news.
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World Limb Girdle Muscular Dystrophy (LGMD) Awareness Day
September 30, 2022
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Dr. Colin Franz Receives Development Grant for Research on Activity-Based Treatments to Accelerate Peripheral Axon Regeneration
May 13, 2022
Colin Franz, MD, PhD, was selected to receive a development grant from the ANF in 2021 for his research project “Activity-Based Treatments to Accelerate Peripheral Axon Regeneration.” Franz’s research will set the stage for a follow-up clinical trial to bring the most promising therapy to patients.
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Dr. Elie Naddaf Receives Development Grant for Research on the Role of Mitochondria in Inclusion Body Myositis
April 28, 2022
Dr. Naddaf is a neurologist, specializing in NM disease, at the Mayo Clinic in Rochester, Minnesota. Dr. Naddaf’s research objective is to describe the precise nature of mitochondrial dysfunction in IBM. His long-term goal is to identify better diagnostic biomarkers for IBM and novel evidence-based, targetable pathways for clinical trials.
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Dr. Yohei Harada Receives Development Grant for Research on Neuromuscular Ultrasound and Electric Impedance Myography in CMT
April 13, 2022
Yohei Harada, MD, was selected to receive a development grant from the ANF in 2021 for his research project “Neuromuscular Ultrasound and Electric Impedance Myography in CMT type 1A:A Prospective Longitudinal Study.”
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Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story
September 16, 2021
Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”
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So Many Sunrises: Janet and Her Restless Legs Syndrome
September 16, 2021
Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.
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Kae Tran Creates Beauty While Embracing Life with MD
September 16, 2021
Between the ages of 13 and 14, everyone’s bodies change. But for Kae Tran, this stage of life also meant she started experiencing mild symptoms of muscular dystrophy. After underestimating these symptoms for years, she was officially diagnosed with muscular dystrophy at age 17.
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Connection is Key: Michael’s Support for Peripheral Neuropathy
September 16, 2021
Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.