News Express

Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story

September 16, 2021

Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”

So Many Sunrises: Janet and Her Restless Legs Syndrome

September 16, 2021

Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.

Kae Tran Creates Beauty While Embracing Life with MD

September 16, 2021

Between the ages of 13 and 14, everyone’s bodies change. But for Kae Tran, this stage of life also meant she started experiencing mild symptoms of muscular dystrophy. After underestimating these symptoms for years, she was officially diagnosed with muscular dystrophy at age 17.

Connection is Key: Michael’s Support for Peripheral Neuropathy

September 16, 2021

Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.

Affected Vocal Cords, Unaffected Humor: Carolyn’s Life With Spasmodic Dysphonia

July 28, 2021

Carolyn Bolz has such a passion for public speaking that she often recites her speeches entirely in rhyme. From Riverside, California, Carolyn fills her life with family, faith, Toastmasters Club, and—for the past several years—the National Spasmodic Torticollis Association (NSTA) led by Justin Aquines and Vi Tran.

From Post-Polio Syndrome to the Boston Marathon: Mary’s Path to Healing

July 28, 2021

Mary McManus, MSW from Chestnut Hill, Massachusetts is many things. She is a motivational speaker, an author, a poet, and a runner. She also happens to be a polio survivor.

Team O for the Win: A Young Boy's Battle Against Duchenne Muscular Dystrophy

February 10, 2021

4 year old Owin Petersen is battling against Duchenne Muscular Dystrophy and Autism Spectrum Disorder.

AANEM Seeking Early Career Speaker to Receive the 2020 Surinderjit Singh Young Lectureship Award

December 13, 2019

New for 2020, the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM) Annual Meeting plenary will include a speaker who is the winner of the Surinderjit Singh Young Lectureship Award. This lecture will honor long-time AANEM member Dr. Surinderjit Singh. The lectureship topic preferably will align with the theme of the 2020 Orlando meeting, Emergent Therapies in Neuromuscular Diseases. There will be plenary speakers to review the current and future landscape in treatments of important neuromuscular diseases such as SMA, ALS, muscular dystrophy and myasthenia gravis.