Dr. Colin Franz Receives Development Grant for Research on Activity-Based Treatments to Accelerate Peripheral Axon Regeneration

    5/13/2022
Colin Franz, MD, PhD, was selected to receive a development grant from the ANF in 2021 for his research project “Activity-Based Treatments to Accelerate Peripheral Axon Regeneration.” Franz’s research will set the stage for a follow-up clinical trial to bring the most promising therapy to patients.

Dr. Elie Naddaf Receives Development Grant for Research on the Role of Mitochondria in Inclusion Body Myositis

    4/28/2022
Dr. Naddaf is a neurologist, specializing in NM disease, at the Mayo Clinic in Rochester, Minnesota. Dr. Naddaf’s research objective is to describe the precise nature of mitochondrial dysfunction in IBM. His long-term goal is to identify better diagnostic biomarkers for IBM and novel evidence-based, targetable pathways for clinical trials.

Dr. Yohei Harada Receives Development Grant for Research on Neuromuscular Ultrasound and Electric Impedance Myography in CMT

    4/13/2022
Yohei Harada, MD, was selected to receive a development grant from the ANF in 2021 for his research project “Neuromuscular Ultrasound and Electric Impedance Myography in CMT type 1A:A Prospective Longitudinal Study.”

So Many Sunrises: Janet and Her Restless Legs Syndrome

    9/16/2021
Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.

Connection is Key: Michael’s Support for Peripheral Neuropathy

    9/16/2021
Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.

Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story

    9/16/2021
Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”

Kae Tran Creates Beauty While Embracing Life with MD

    9/16/2021
Between the ages of 13 and 14, everyone’s bodies change. But for Kae Tran, this stage of life also meant she started experiencing mild symptoms of muscular dystrophy. After underestimating these symptoms for years, she was officially diagnosed with muscular dystrophy at age 17.

Affected Vocal Cords, Unaffected Humor: Carolyn’s Life With Spasmodic Dysphonia

    7/28/2021
Carolyn Bolz has such a passion for public speaking that she often recites her speeches entirely in rhyme. From Riverside, California, Carolyn fills her life with family, faith, Toastmasters Club, and—for the past several years—the National Spasmodic Torticollis Association (NSTA) led by Justin Aquines and Vi Tran.
 

From Post-Polio Syndrome to the Boston Marathon: Mary’s Path to Healing

    7/28/2021
Mary McManus, MSW from Chestnut Hill, Massachusetts is many things. She is a motivational speaker, an author, a poet, and a runner. She also happens to be a polio survivor.

Team O for the Win: A Young Boy's Battle Against Duchenne Muscular Dystrophy

    2/10/2021
4 year old Owin Petersen is battling against Duchenne Muscular Dystrophy and Autism Spectrum Disorder.