ANF News Express

AANEM Foundation News Express

Team O for the Win: A Young Boy's Battle Against Duchenne Muscular Dystrophy

4 year old Owin Petersen is battling against Duchenne Muscular Dystrophy and Autism Spectrum Disorder.

Deadline Approaching to Apply for Surinderjit Singh Young Lectureship Award

The winner of the Surinderjit Singh Young Lectureship Award will be featured as a plenary speaker at the AANEM Annual Meeting.

Meet the American Neuromuscular Foundation's Public Board Member

The American Neuromuscular Foundation (ANF) is excited to introduce its first Public Board Member, Barry McLeish. McLeish will spearhead the effort to help ANF become a driving force in neuromuscular research.

Connection Is Key: How One GBS Survivor Is Making a Difference Online

When Dalton Floyd was 12 years old, he created a Facebook page. While this page could’ve been dedicated to his favorite professional wrestler or everything esports, he picked something a bit heavier, and a bit closer to his heart: Guillain-Barr√© syndrome (GBS). 

New Jersey Mother Fights for More SMA Testing of Newborns

Regina Philipps is a fighter. She fights for her son, Shane, a 2-year-old boy who is living with spinal muscular atrophy (SMA), and every other child who didn’t receive an SMA newborn screening. Shane wasn’t diagnosed until he was 10 months old, after Regina and her husband Chris noticed some strange symptoms about 6 months earlier.

Growing Up With FSHD: A Young Woman's Effort to Raise Awareness About the Rare Neuromuscular Disease

When Lexi Pappas was 11 years old, she started showing symptoms of facioscapulohumeral muscular dystrophy (FSHD). Her scapula, more commonly known as the shoulder bone, began protruding, resulting in pain and embarrassment for the middle schooler. However, these symptoms didn’t come as a surprise to Lexi or her parents. FSHD runs in their family.

Dr. Alexander Chamessian Receives ANF Development Grant

Alexander Chamessian, MD, PhD, has been selected as a recipient of an American Neuromuscular Foundation Development Grant. Dr. Chamessian’s project is called “Determining the Pathogenicity of Autoantibodies in Idiopathic Small Fiber Neuropathy.” Small fiber neuropathy (SFN) is a group of disorders that involves preferential damage to and dysfunction of small diameter sensory and autonomic nerve fibers.

Dr. R. James Cotton Receives Clinical Research Fellowship

R. James Cotton, MD, PhD, has been selected as the recipient of the American Neuromuscular Foundation’s (ANF) Clinical Research Fellowship to provide insights and answers about the safety and effectiveness of the neurological application of neurotoxins.

Carolina Barnett-Tapia, MD, Named Inaugural Young Lectureship Award Winner

For the first time, the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM) Annual Meeting plenary will include a speaker who is the winner of the Surinderjit Singh Young Lectureship Award. The inaugural winner, and newest speaker added to the 2020 AANEM Annual Meeting plenary schedule, is Carolina Barnett-Tapia, MD. AANEM President Yuen So, MD, made the selection after reviewing an extremely talented pool of applicants.

The American Neuromuscular Foundation is Seeking a Public Board Member

The American Neuromuscular Foundation (ANF) seeks a Public Board Member to help the organization become a driving force in neuromuscular research.