ANF News Express

AANEM Foundation News Express

Meet the American Neuromuscular Foundation's Public Board Member

    12/3/2020
The American Neuromuscular Foundation (ANF) is excited to introduce its first Public Board Member, Barry McLeish. McLeish will spearhead the effort to help ANF become a driving force in neuromuscular research.
 

Connection Is Key: How One GBS Survivor Is Making a Difference Online

    10/19/2020
When Dalton Floyd was 12 years old, he created a Facebook page. While this page could’ve been dedicated to his favorite professional wrestler or everything esports, he picked something a bit heavier, and a bit closer to his heart: Guillain-Barré syndrome (GBS). 

New Jersey Mother Fights for More SMA Testing of Newborns

    10/19/2020
Regina Philipps is a fighter. She fights for her son, Shane, a 2-year-old boy who is living with spinal muscular atrophy (SMA), and every other child who didn’t receive an SMA newborn screening. Shane wasn’t diagnosed until he was 10 months old, after Regina and her husband Chris noticed some strange symptoms about 6 months earlier.

Growing Up With FSHD: A Young Woman's Effort to Raise Awareness About the Rare Neuromuscular Disease

    10/19/2020
When Lexi Pappas was 11 years old, she started showing symptoms of facioscapulohumeral muscular dystrophy (FSHD). Her scapula, more commonly known as the shoulder bone, began protruding, resulting in pain and embarrassment for the middle schooler. However, these symptoms didn’t come as a surprise to Lexi or her parents. FSHD runs in their family.
 

Dr. Alexander Chamessian Receives ANF Development Grant

    9/8/2020
Alexander Chamessian, MD, PhD, has been selected as a recipient of an American Neuromuscular Foundation Development Grant. Dr. Chamessian’s project is called “Determining the Pathogenicity of Autoantibodies in Idiopathic Small Fiber Neuropathy.” Small fiber neuropathy (SFN) is a group of disorders that involves preferential damage to and dysfunction of small diameter sensory and autonomic nerve fibers.
 

Dr. R. James Cotton Receives Clinical Research Fellowship

    8/19/2020
R. James Cotton, MD, PhD, has been selected as the recipient of the American Neuromuscular Foundation’s (ANF) Clinical Research Fellowship to provide insights and answers about the safety and effectiveness of the neurological application of neurotoxins.
 

Carolina Barnett-Tapia, MD, Named Inaugural Young Lectureship Award Winner

    4/7/2020
For the first time, the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM) Annual Meeting plenary will include a speaker who is the winner of the Surinderjit Singh Young Lectureship Award. The inaugural winner, and newest speaker added to the 2020 AANEM Annual Meeting plenary schedule, is Carolina Barnett-Tapia, MD. AANEM President Yuen So, MD, made the selection after reviewing an extremely talented pool of applicants.
 

The American Neuromuscular Foundation is Seeking a Public Board Member

    3/20/2020
The American Neuromuscular Foundation (ANF) seeks a Public Board Member to help the organization become a driving force in neuromuscular research.

AANEM Seeking Early Career Speaker to Receive the 2020 Surinderjit Singh Young Lectureship Award

    12/13/2019
New for 2020, the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM) Annual Meeting plenary will include a speaker who is the winner of the Surinderjit Singh Young Lectureship Award. This lecture will honor long-time AANEM member Dr. Surinderjit Singh and be on the topic of Emerging Therapies in Neuromuscular Diseases, Dr. Yuen So’s plenary topic for 2020. 

Christopher Anselmo’s Journey from Ability to Disability with Muscular Dystrophy

    11/6/2019
As a high school senior in 2003, Christopher Anselmo found himself hospitalized after a car accident. While in the hospital, doctors performed a routine blood test and discovered Christopher had extremely high creatine kinase enzyme levels. In 2004, after numerous doctor’s appointments and a thigh biopsy, Christopher was diagnosed with dysferlinopathy (also known as Miyoshi myopathy and limb girdle muscular dystrophy type 2B), caused by a lack of a protein called dysferlin – a protein that aids in the repair of muscle cell membranes.