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STRENGTHENING the global effort

to CURE neuromuscular disease

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  • Research
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      • Development Grants
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      • Neurological Application of Neurotoxins
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      • Elie Naddaf, MD
      • Yohei Harada, MD
      • Colin Franz, MD, PhD
      • Alexander Chamessian, MD, PhD
      • R. James Cotton, MD, PhD
      • Michelle Kvalsund, MD
      • Karissa Gable, MD
      • Carlo Rinaldi, MD, PhD
      • Suma Babu, MBBS, MPH
      • Shruti Raja, MD
      • Teryl K. Nuckols, MD
      • Christi L. Kolarcik, PhD
      • Lisa Williams, MD
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ANF News Express

AANEM Foundation News Express

Growing Up With FSHD: A Young Woman's Effort to Raise Awareness About the Rare Neuromuscular Disease

    10/19/2020
When Lexi Pappas was 11 years old, she started showing symptoms of facioscapulohumeral muscular dystrophy (FSHD). Her scapula, more commonly known as the shoulder bone, began protruding, resulting in pain and embarrassment for the middle schooler. However, these symptoms didn’t come as a surprise to Lexi or her parents. FSHD runs in their family.
 


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About
  • Mission & History
  • Board & Committees
  • Foundation Staff
  • Contact Us
Research
  • Grant Funding
  • Clinical Research Fellowships
  • Funded Research Projects
Donate
  • Donate
  • Silent Auction Donations
Awards
  • Golseth Young Investigator
  • Best Abstract
  • President's Research Initiative
  • Residency and Fellowship
  • Medical Student Research Award
  • Technologist Best Abstract Award
  • International Scholarships
  • Surinderjit Singh Young Lectureship Award

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Phone: 507.288.0100
Fax: 507.288.1225
foundation@neuromuscularfoundation.org

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