Growing Up With FSHD: A Young Woman's Effort to Raise Awareness About the Rare Neuromuscular Disease

    10/19/2020
When Lexi Pappas was 11 years old, she started showing symptoms of facioscapulohumeral muscular dystrophy (FSHD). Her scapula, more commonly known as the shoulder bone, began protruding, resulting in pain and embarrassment for the middle schooler. However, these symptoms didn’t come as a surprise to Lexi or her parents. FSHD runs in their family.