ANF News Express

AANEM Foundation News Express

So Many Sunrises: Janet and Her Restless Legs Syndrome

Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.

Connection is Key: Michael’s Support for Peripheral Neuropathy

Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.

Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story

Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”

From Post-Polio Syndrome to the Boston Marathon: Mary’s Path to Healing

Mary McManus, MSW from Chestnut Hill, Massachusetts is many things. She is a motivational speaker, an author, a poet, and a runner. She also happens to be a polio survivor.

Team O for the Win: A Young Boy's Battle Against Duchenne Muscular Dystrophy

4 year old Owin Petersen is battling against Duchenne Muscular Dystrophy and Autism Spectrum Disorder.

Meet the American Neuromuscular Foundation's Public Board Member

The American Neuromuscular Foundation (ANF) is excited to introduce its first Public Board Member, Barry McLeish. McLeish will spearhead the effort to help ANF become a driving force in neuromuscular research.

Connection Is Key: How One GBS Survivor Is Making a Difference Online

When Dalton Floyd was 12 years old, he created a Facebook page. While this page could’ve been dedicated to his favorite professional wrestler or everything esports, he picked something a bit heavier, and a bit closer to his heart: Guillain-Barré syndrome (GBS). 

New Jersey Mother Fights for More SMA Testing of Newborns

Regina Philipps is a fighter. She fights for her son, Shane, a 2-year-old boy who is living with spinal muscular atrophy (SMA), and every other child who didn’t receive an SMA newborn screening. Shane wasn’t diagnosed until he was 10 months old, after Regina and her husband Chris noticed some strange symptoms about 6 months earlier.

Growing Up With FSHD: A Young Woman's Effort to Raise Awareness About the Rare Neuromuscular Disease

When Lexi Pappas was 11 years old, she started showing symptoms of facioscapulohumeral muscular dystrophy (FSHD). Her scapula, more commonly known as the shoulder bone, began protruding, resulting in pain and embarrassment for the middle schooler. However, these symptoms didn’t come as a surprise to Lexi or her parents. FSHD runs in their family.

Dr. Alexander Chamessian Receives ANF Development Grant

Alexander Chamessian, MD, PhD, has been selected as a recipient of an American Neuromuscular Foundation Development Grant. Dr. Chamessian’s project is called “Determining the Pathogenicity of Autoantibodies in Idiopathic Small Fiber Neuropathy.” Small fiber neuropathy (SFN) is a group of disorders that involves preferential damage to and dysfunction of small diameter sensory and autonomic nerve fibers.