ANF News Express

AANEM Foundation News Express

So Many Sunrises: Janet and Her Restless Legs Syndrome

Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.

Connection is Key: Michael’s Support for Peripheral Neuropathy

Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.

Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story

Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”

Kae Tran Creates Beauty While Embracing Life with MD

Between the ages of 13 and 14, everyone’s bodies change. But for Kae Tran, this stage of life also meant she started experiencing mild symptoms of muscular dystrophy. After underestimating these symptoms for years, she was officially diagnosed with muscular dystrophy at age 17.

Affected Vocal Cords, Unaffected Humor: Carolyn’s Life With Spasmodic Dysphonia

Carolyn Bolz has such a passion for public speaking that she often recites her speeches entirely in rhyme. From Riverside, California, Carolyn fills her life with family, faith, Toastmasters Club, and—for the past several years—the National Spasmodic Torticollis Association (NSTA) led by Justin Aquines and Vi Tran.

From Post-Polio Syndrome to the Boston Marathon: Mary’s Path to Healing

Mary McManus, MSW from Chestnut Hill, Massachusetts is many things. She is a motivational speaker, an author, a poet, and a runner. She also happens to be a polio survivor.

Christopher Anselmo’s Journey from Ability to Disability with Muscular Dystrophy

As a high school senior in 2003, Christopher Anselmo found himself hospitalized after a car accident. While in the hospital, doctors performed a routine blood test and discovered Christopher had extremely high creatine kinase enzyme levels. In 2004, after numerous doctor’s appointments and a thigh biopsy, Christopher was diagnosed with dysferlinopathy (also known as Miyoshi myopathy and limb girdle muscular dystrophy type 2B), caused by a lack of a protein called dysferlin – a protein that aids in the repair of muscle cell membranes.

Sean Dorney: Grappling with ALS in His Golden Years

Many working adults fantasize about their retirement years, when their children are grown, they can stop earning an income, and the biggest worry becomes how to spend their newfound free time. One doesn’t expect to spend their “Golden Years” with a debilitating neuromuscular disease, but that’s exactly what happened to Sean Dorney, an award-winning journalist from Australia. 

Orlando Houston: “I May Have ALS, but ALS Doesn’t Have Me!”

Orlando Houston, recently diagnosed with ALS in October 2018, believes that researchers will find a cure for ALS someday, but to find it, continued scientific research is needed. 

“The cure is out there,” Orlando said. “We have people willing to do the research, we just need people willing to help support this research. As long as we continue to seek, we will soon find the missing key!”