ANF News Express

AANEM Foundation News Express

August is Spinal Muscular Atrophy (SMA) Awareness Month

Each August is Spinal Muscular Atrophy (SMA) Awareness month, a month dedicated to raising awareness of the condition. Those who suffer from SMA lose the ability to walk, eat and breathe without medical intervention.

So Many Sunrises: Janet and Her Restless Legs Syndrome

Janet Yaeger is a painter, decorator, and children’s book author who loves to travel and spend time with her husband of 45 years. Janet Yaeger, of Mt. Vernon, IL, also spent years thinking she was “losing her mind” due to the strange symptoms in her legs that kept her awake.

Connection is Key: Michael’s Support for Peripheral Neuropathy

Michael Wright of Charlotte, North Carolina enjoys swimming, painting rocks, gardening, binge watching TV shows, trying new restaurants, and being with family. His other hobby, however, takes up a bit more time.

Racing Laps for a Cure: Brad’s Becker Muscular Dystrophy Story

Brad Miller of Ontario, Canada, began experiencing frequent falls and difficulties running as a young boy. “Early on, I had a hard time keeping up with the other kids my age,” Brad explains. “When the other children started climbing trees and fences, it simply wasn’t possible for me.”

Kae Tran Creates Beauty While Embracing Life with MD

Between the ages of 13 and 14, everyone’s bodies change. But for Kae Tran, this stage of life also meant she started experiencing mild symptoms of muscular dystrophy. After underestimating these symptoms for years, she was officially diagnosed with muscular dystrophy at age 17.

Affected Vocal Cords, Unaffected Humor: Carolyn’s Life With Spasmodic Dysphonia

Carolyn Bolz has such a passion for public speaking that she often recites her speeches entirely in rhyme. From Riverside, California, Carolyn fills her life with family, faith, Toastmasters Club, and—for the past several years—the National Spasmodic Torticollis Association (NSTA) led by Justin Aquines and Vi Tran.

From Post-Polio Syndrome to the Boston Marathon: Mary’s Path to Healing

Mary McManus, MSW from Chestnut Hill, Massachusetts is many things. She is a motivational speaker, an author, a poet, and a runner. She also happens to be a polio survivor.

Team O for the Win: A Young Boy's Battle Against Duchenne Muscular Dystrophy

4 year old Owin Petersen is battling against Duchenne Muscular Dystrophy and Autism Spectrum Disorder.

Deadline Approaching to Apply for Surinderjit Singh Young Lectureship Award

The winner of the Surinderjit Singh Young Lectureship Award will be featured as a plenary speaker at the AANEM Annual Meeting.

Meet the American Neuromuscular Foundation's Public Board Member

The American Neuromuscular Foundation (ANF) is excited to introduce its first Public Board Member, Barry McLeish. McLeish will spearhead the effort to help ANF become a driving force in neuromuscular research.