ANF News Express

AANEM Foundation News Express

Meet James Higginson: Award-Winning Artist and Guillain-Barré Syndrome Survivor

Photographer/director/artist, James Higginson, has accomplished much in his 60 years. Among his numerous accolades, he has received an Emmy Award for his set decoration work on the 1980’s show “Pee-Wee’s Playhouse,” international film festival awards for his 2012 feature length experimental art film, “Willful Blindness,” and has completed a new documentary, “Devout.” James was hoping to release his documentary in 2017, but 6 months ago, while working on house renovations, his hands and feet went numb. His diagnosis: Guillain-Barré Syndrome. 

Update on Dr. Lisa Williams’ Clinical Research in the Neurological Application of Neurotoxins

In 2016, the foundation was pleased to select Lisa M. Williams, MD, as the recipient of the Clinical Research Fellowship Award in Neurological Application of Neurotoxins. Dr. Williams used this funding to continue her focus on dysphagia in neuromuscular diseases while completing a second fellowship at the University of California, Davis Medical Center (UCDMC). Her research efforts as part of this fellowship award began on August 1, 2016, and continued through July 31, 2017.   

2018 AANEM Annual Meeting: Funds Available for Physicians from Economically Developing Countries to Attend

The AANEM Foundation offers International Fellowship Award opportunities for up to 5 physicians from economically developing countries to attend the 2018 AANEM Annual Meeting in Washington, DC on October 10-13, 2018. Additionally, applicants who submit an application but do not receive a Foundation International Fellowship Award are automatically considered for awards offered through the North American Chapter of the International Federation of Clinical Neurophysiology (IFCN). The IFCN distributes 10-15 awards.

Win an Award for Your Scientific Research!

Find out more about abstract awards you could win from the AANEM Foundation. Abstracts for 2018 will be accepted between January 1 and March 15, 2018.  

James Ramirez’s First Grade Life: Hot Wheels, Rock Music, and Duchenne Muscular Dystrophy

Six-year-old James Ramirez enjoys watching “The Magic School Bus” and dinosaur movies, playing with his Hot Wheels cars, and listening to rock music. His mother, Samantha, describes him as a “little goofball who is full of energy.”

While he may be energetic, as much as he tries, James just cannot keep up with other kids his age because his muscles don’t work as well as theirs.

The official diagnosis of Duchenne muscular dystrophy (DMD) came on September 6, 2016 – on James’ first day of kindergarten.

Moving from Family Secrecy to Public Advocacy: Bernadette Scarduzio and Her Life with Charcot-Marie-Tooth

A disease that was once a family secret has now become Bernadette Scarduzio’s greatest passion – Charcot-Marie-Tooth (CMT).

Meet Beck Cammarata, 7-Year-Old Living with Duchenne Muscular Dystrophy


Help patients like Beck by making a donation today!

In many ways, Beck Cammarata is like most 7-year-olds. He plays Cops and Robbers at recess with his friends, loves cars, and as many kids do, fights with his older sisters. But Beck has also endured much more than most kids his age as a child living with Duchenne muscular dystrophy (DMD).